I am NOT a Drama Queen


Well, I am officially off of bed rest for now and I’ve made it to 13 weeks and that is another reason to say “so far, so good.”  Thank you all for your well wishes.  I have had no other spotting or bleeding since the first incident and am taking it very easy from now on.  I went to my ObDoc for a routine appointment on Thursday.  I was weighed (hard to accept that gaining a pound in a couple of week is a “good thing”), we got culture samples and my ObDoc checked my uterus. We were able to hear two separate heartbeats at 149 and 155 bpm on the doppler gizmo so that gave me a little bit of breathing room.

Before I get to the next part of my tale, I just wanted to state this for the record.

BabyJane002

I am NOT a drama queen.

I hate drama, I don’t want drama.  Keeping drama to the movies I watch is the only place I want that shit in my life.  I don’t thrive on it.  I am not an attention hog.  I want to be normal and boring and typical when it comes to this stuff.  I’m not a person who goes out of their way to create tension or strife.  Hell, I’m even a happy drunk…BTW…“I love you man.”  I like zany, I like snarky, I like laughing ‘til my face hurts.  I like good food and drink, fun conversation and a night of playing board games. 

Imagine my face then when three days ago my ObDoc’s office calls and lets me know that after my big bleed episode of the prior week (I had 12 vials of blood taken for various tests) it seems that I was tested and have come back positive for a blood clotting disorder, specifically for compound heterozygous MTHFR. 

MoTHerFuckeR.

BabyJane003 Here is an awesome blog I found that has a good tutorial.  Here is a good page on Thombophilias from the March of Dimes website.  The ObDoc’s office immediately put me on a prescription for FOLGARD taken twice daily.  Each pill is a mega-dose of folic acid 2.2mg, B-6 25mg, and B-12 1mg.  I have also been put on low-dose aspirin.  Hopefully these things will help.  If you have a MTHFR mutation your body does not absorb folate properly and you are also at greater risk for blood clots affecting you and baby.  MTHFR mutation complications and risks (some mutations are more serious than others) published in scientific papers in peer reviewed journals have been linked to multiple miscarriages (including early 1st, late 1st and 2nd term loss), implantation problems, congenital heart defects, preeclampsia, and clots that affect baby’s placenta, causing growth problems and pre-natal death. 

Great.  Think at 41 you make it to 13 weeks with kiddos looking fine you can perhaps maybe breathe just a little bit easier.  F-You IF Optimist, what do you think?

<Sigh>

BabyJane001

I am NOT a drama queen.

Here is what I am.  I AM a bit ticked off that no one found this out earlier so I could have taken better precautions, I mean I was tested for just about everything under the sun between my RE and my myomectomy ObDoc.  I AM grateful for my current ObDoc, a fine and intelligent lady.  I AM happy that even though I have this, it isn’t the most dangerous form of the mutation and can be managed by doctors.  I AM concerned because I have read of ladies losing their babies in the late part of their pregnancies because of clots in the placenta or umbilical cord.  I AM relieved to know that most of those who had tragic losses were untreated for their MTHFR and once they were aware, properly monitored and treated, went on to have healthy babies.  I AM worried because remember me having to take off to Florida to take care of my brother?  That was because of deep vein thrombosis (a blood clot in the leg) leading to a pulmonary embolism.  I AM glad that although my brother had this serious condition, he was a two-pack a day smoker while I have never smoked (he has since quit smoking).  I AM glad that although they found the MTHFR mutation, currently my homocystine levels were normal.  I AM extremely happy that I have made it this far in the pregnancy.  I AM also very glad that the NT scan looked good, so I hope I am doing OK for folate absorption. 

As I said earlier, I found out about MTHFR on Tuesday so both MrBeep and I were spending a lot of time on Dr. Google, NIH and PubMed to find out more, make sure we understand the dangers, etc.  I didn’t want to post until I had a much clearer understanding of my current situation.  I did come up with a list of questions for my ObDoc.  I now have a little red moleskin notebook that I will take notes and write questions so I don’t forget for my doctor’s appointments.  After our routine exam was completed, here were the questions I asked her:

Q:  My brother was just hospitalized for 6 days due to a deep vein thrombosis and subsequent pulmonary embolism. He is 1.5 years older than I am.  He is also 80 lbs overweight and a 2 pack a day smoker.  While my homocystine levels tested normal, does this put me at greater risk? 

A:  (At this information her face dropped a little and her tone became more serious) I want you to call the MFM specialist, get an appointment and let him know this.  I think we are good with the extra Folgard and the baby aspirin, but he may want to put you on lovenox.

Q:  I am curious to know what prompted to you test me for MTHFR?  Was it the big bleeding episode?

A:  Actually, it was because of your chemical pregnancy back in June.  We also tested you for other common clotting disorders including Factor V, Protein C, Protein S, Lupus, etc.  You tested negative for all other clotting factors which is a very good thing.

Q:  Do you think that my big bleeding episode last week was caused by the Total Previa or the MTHFR issue?

A:  Previa.  MTHFR doesn’t normally cause that type of bleeding, even with the clots you had.  Also it is a common thing with a total previa, even in early pregnancy.

Q:  My homocystine levels were normal.  How often will this be tested to make sure there is no increase?  Also, I was not fasting when the blood was taken, are you concerned about this?

A:  We’ve found that these levels rarely change this far into pregnancy.  I’m not concerned about the fasting, studies show no difference.

Q:  I have been reading about people with this condition getting Lovenox.  When is this prescribed versus just extra Folgard and baby aspirin.

A:  Typically it is prescribed if you have had several losses, have had  known clot or thrombosis yourself, or if you have more than one clotting disorder. 

So, my friends.  That was my week.  I have a call into the Maternal-Fetal medical specialists who will consider whether or not I should also receive injections of Lovenox in addition to my current vitamins.  While I don’t like having additional factors to worry about, I am actually really glad we caught this early.  I am very very happy that I found a good team of doctors who are proactive and on the ball.  I get to decorate the house for Christmas tonight with MrBeep, my MIL and FIL.  My ObDoc (I promise to write more about her later) has been able to put me at ease with her great personality, superb knowledge and professionalism.  She did say this to me, “well won’t it be great to have these two kiddos out for Christmas next year?”  I was so happy at that thought I could cry.  I just said, “I hope so.  That would be really wonderful.” 

20 comments on "I am NOT a Drama Queen"

k on December 18, 2009 at 2:21 PM said...

Agreed, you are NOT a drama queen!

But hot damn, thrombophilia? they tested me for it (and I'm on lovenox and baby aspirin and extra folate) because of multiple miscarriages, usually I heard they never test you for that stuff.

Thank goodness they caught it early on and will treat you and monitor you.

My two cents? Really inquire with the MFM about the lovenox, the thing is, after delivery you're at even higher risks of clots so maybe you need lovenox at least post-delivery to monitor and keep those clots at bay.

Amanda on December 18, 2009 at 2:22 PM said...

You're NOT a Drama Queen, but it wants to come visit you for a while it seems. ;-)

Just want to let you know that I have Prothrombin Factor II Heterozygous. I was already on a huge dose of folic acid due to the fact I was carrying twins & was told if I wanted to I could take a small dose of aspirin a day. I'm now preparing to celebrate Christmas with my just-turned-one twin boys.

Your doc sounds AMAZING! Hooray for her being so on the ball and taking all precautions! It sounds like you couldn't be in better hands. :-)

Amanda on December 18, 2009 at 2:23 PM said...

Oh yeah, K is right. I didn't think about that. They DID have me on lovenox after my C-section and would have even if I'd delivered vagi.nally.

IVF 40+ on December 18, 2009 at 2:27 PM said...

Holy crap, glad they caught this when they did. It seems to be much more common lately - I've read about 6 women that have been diagnosed with one form or the other.

13 weeks! congratulations!
Eb

Kate on December 18, 2009 at 2:29 PM said...

I think I love your OB for being so thorough and so knowledgeable. She sounds great.
Congrats on two healthy monsters at 13 weeks!

Barefoot on December 18, 2009 at 2:42 PM said...

Of course you are not a drama queen! You just happen to have a lot of drama swirling around you these days.

I'm so sorry to hear about the mothereffer, but so happy that they found it early. I hope you get the answers you need from the MFM.

One Who Understands on December 18, 2009 at 2:55 PM said...

Wow! That is a lot to take in. So glad they tested you for it and found it early. I don't want to think about what could've happened.

Did your RE have you take baby aspirin at all during your IVF treatment?

Your OB does sound wonderful. Congrats on making it to 13 weeks! Gosh your pregnancy seems to be flying by! Yeah for having the 1st trimester over.

And no, you are not a drama queen!

Phoebe on December 18, 2009 at 3:22 PM said...

I'm so glad you are off bedrest. I'm wishing for you boring and no drama for the rest of your pregnancy!!

meinsideout on December 18, 2009 at 5:10 PM said...

Motherfucker is right - I hear you on not dwelling but WTF - all the testing we go through and they did not find it????

Any-hoo - glad you are off bed rest and not bleeding - I have been wondering how you are.

jill on December 18, 2009 at 5:17 PM said...

Wow I can't even imagine being thrown that curveball. You handled it so well! Crazily organized with your little red notebook. You're my doctor appt role-model!

I too am happy they found this now and can start treating you right away. Grow little monsters, grow!

The Steadfast Warrior on December 18, 2009 at 5:20 PM said...

Okay, wow, that's a lot to take in. I'm glad you and your husband got answers to your questions. You sound like you in good hands. Hoping the MFM has more ansers for you. Menawhile, you and the Monsters are doing well. You've caught this at a point where you can do something about it.

HUGS!

Sunny on December 18, 2009 at 7:29 PM said...

Whew! The good and the bad, huh? First, congrats on being off of bedrest and making it to 13 weeks! Major rockage!

But sorry to hear about the m*th*rf*ck*r thing. :( I too am very impressed that your doc tested you for it, and that you can meet it head on instead of being surprised later. My supervisor at a former job had that as well. She had three healthy children, no problem with conception, gestation, or delivery, and they didn't test her for it until she had two *very early* miscarriages TTC #4. Thinking of you!!

Beautiful Mess on December 19, 2009 at 12:30 AM said...

GOOD LORD AND A QUARTER!!!! I am glad that it was caught early, as well. Sorry you're having to have this on your mind, thought. Your doc sounds AMAZING! I'm glad you're in such good hands.

Have a great weekend!
*HUGS*

Kathy and Oli on December 19, 2009 at 5:00 AM said...
This comment has been removed by the author.
Queenie. . . on December 20, 2009 at 6:04 AM said...

It sounds like you have a fabulous dr. It's great that she caught it, and is doing something about it. Good luck with the MFM. It sounds like you are in really good hands.

Jem on December 21, 2009 at 2:17 PM said...

Oh, you poor sweetie! No, you're not being a drama queen. This is a BFFD (Big Fat Fucking Deal). It does sound like you are in excellent hands.

Keep us updated.

mekate on December 21, 2009 at 5:47 PM said...

happy 13 weeks lovely Traci, and so glad you found out about the motherfucker bullshit but I think now that you know (so glad you know), your medical posse can be on it and do the best they can to support you.

I feel undertested too- I wish they just did the whole shebang before they make you prove though experience that something is amiss.

I hate drama. Give me a comfy sofa and a warm crackling fire. Happy no more bedrest! Let that be the last of it.

Missed you terribly, glad to be home.
xo
kate

Soapchick on December 22, 2009 at 4:40 AM said...

Here from L&F and a fellow 41 year old. Hoping for a soon to be drama free pregancy for you. That blows about the Mother Fucker mutation, but I'm sure you will kick it to the curb with the proper drugs and such. Best wishes.

one-hit_wonder on December 22, 2009 at 1:41 PM said...

I'm pissed off on your behalf that this wasn't discovered sooner.

K on December 22, 2009 at 5:43 PM said...

Holy shitz. I am just catching up on your stuff. I am so glad your ob did the blood work. And it sounds like you are in good hands with good management. Congrats on your good screening results too. Hmmmm. Debating whether or not to email you some info.

 

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